Today has been a good day. I keep looking over my shoulder wondering where the roller coaster is that we had been riding while on ICU. Here on A6South, it's been more like a "walk in the park". That seems really weird to even say considering where we have been and how far we are from Jenna's baseline, but compared to ICU....

Anyway, today Jenna came off her oxygen, and they disconnected her from the continuous monitoring. Her nephrologists also told us her kidneys continue to improve and the catheter in her neck can come out. Praise God for this great news! No more dialysis!
On a fun note, despite Jenna continuing to be sleepy, I carried her down to the playroom to see if anything sparked her interest enough to wake up, but also just to get her out of the bed and out of her room! So I carried her around the playroom, pointing out all the fun things, and last but not least was the arts and crafts section. She spotted an easel and paints, and was ready to get painting. She spent about 30 minutes creating her first masterpiece (mommy knowing that it was 30 minutes of therapy), which is now hanging on the wall in her room.
So the roller coasters seem to be behind us, and the walk through the park seems like it should be smooth, with the biggest hurdles to be overcoming the sedation/withdrawal, coming off the feeding tube to full feeding by mouth, and returning to independent and safe functional mobility.

Thank you, thank you, thank you to all of you! Words can not express how moved and grateful to everyone out there offering thoughts and prayers and support of all kinds. Keep the prayers coming for Jenna and all the sick children and their families here at Children's, and continue to EXPECT GREAT THINGS! God is bigger than all this stuff, and is soooooo GOOD!

Good night and God Bless!