This morning as I was writing in my journal, catching up with the occurrences of yesterday and thinking about the day ahead, the thought of a cocoon and an emerging butterfly came to mind. Each day we seem to get a little more of our Jenna back. Sometimes she pokes her head out, but goes completely back in, and sometimes we see just a little of her, and that little may stay or go. As I said earlier, each day she's a little better, and we seem to get more and better glimpses of the emerging butterfly. For example, last night she woke briefly and gave me a very sad face and was whimpering, so I climbed up in bed with her, got in her face and was telling her all good things. "What's wrong...you're doing so good...I'm so proud of you" and so on. Well she reached her little (elbow splinted) arms up to me, and pulled me closer, and gave me a kiss!!! Is that not the sweetest thing ever!! Come on little butterfly!!
Well, today we had tinkle! but we also had dialysis :-( Despite the switch in catheter last night she still did not tolerate dialysis (ie: low blood pressure with need for medicine, diarrhea, vomiting, and fever). After dialysis, she had problems with bleeding from one of her lines, and needing dressing changes. It was quite a ride for all of us, and I think the docs might be stumped as to why Jenna does not like dialysis.
Luke and I got to both go home for a little while for cake and ice cream. Our Kate turned 7 today! That was great for all and Kate got some cool stuff, too.
Jenna is resting comfortably now, the lights are dim, and there are many different "white noises" to fall asleep to, so I am headed in that direction.
Please continue to pray for a speedy and complete recovery, and specifically pray for more TINKLE...and pray for the doctors.
"The humility of prayer is better than the might of all human preparation." Saint Thomas of Villanova
Good night and God Bless!
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5 comments:
Tinkle?? YES!! Way to go Jenna. Each and every step gives such great hope for tomorrow.
Question - "How thin can you spread jelly before it is no longer sweet?" I don't know the answer either but I know you two are spread pretty thin right now and you haven't lost your parental sweetness. What a great thing you do; to be fully consumed with Jenna's struggle and also make time to embrace your other children and try to keep their lives somewhat "normal". We just know that Kate feels special because you celebrated her birthday with her in the midst of the storm. God knew what he was doing by giving you these children. You both are among his best assistant shepherds (he's the head shepherd) and your children surely know how much you care for and love them.
We continue to pray for the Hail family and we hope you can find moments of rest for yourselves. These four little angels need you to be there for them.
Camille and Andy
Just wanted you to know you are in our thoughts and prayers always.
Jeff and Diana Stewart
I am so happy for TINKLE. Yes - Jenna. Way to go, girlfriend.
Yes, Missy. Her pulling you close and kissing you. That is the sweetest thing in the world. I cried when I read that. Next time give her a big kiss from all of us. Tell Katie - Happy Birthday too.
Joyce Wolfe Unkraut
Yay for some pee pee!! Never been so happy to hear about it! You keep doing what you're doing Jenna and we'll keep prayin for you on this end. We love you.
Jill and Bo
Well, sweet little kisses are always the best. Go Jenna Go! Also, tell Kate happy birthday and sorry we forgot to send a card! Take care everyone. Love and prayers are on your side.
Love, SVJML
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